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Vital Info


Billan (billan)


July 22, 2011


Alabama


April 13, 1960

Cancer Info


Tonsil Cancer


Squamous cell


July 22, 2011


Stage 4


03


Grade 2


Yes


Lymph Node Removal


Radiation Therapy


Cisplatin (Platinol, Platinol-AQ)


No control, not sure if what I feel is what I should feel with the chemo


To ask others for help


Tonsil to Lymph nodes


September 26, 2011



Stats


Posts: 37
Photos: 2
Events: 0
My Supporters: 62
I Support: 105
Comments: 288
Views: 20687
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Billan's Cancer Blog

Computer issues

Hi,
I want to vent about something unrelated to cancer (I seem to have more anger issues lately).

My power cord on my Alienware (Dell product) laptop went out on Feb 12. I ordered a new one and had it overnighted for 21.99 extra. My laptop is my only home computer.

I had not recieved it on Feb. 14th and I called. They said that overnighted was after it had been processed and it would take four days to process the order. I would recieve it on Feb 17th. I complained and got shipping credited.

On the 17th, Dell called and said there was a delay due to high demand for the cord and it would ship on Feb. 22. I ask for a supervisor to call me back.

No call by Feb. 19th so I ordered a Macbook Air by Apple so I wouldn’t have to deal with Dell anymore.

On the 22nd, Dell called and the cord is delayed until the 27th (15 days after the orginal order to be overnighted).

If Dell delivers on the 27th, I will recieve my Macbook Air (that had to be built because I ordered extra features) and my cord from Dell on the same day.

At least I have the Alienware as a back up and I’m really excited to get the Macbook Air.

My little rant of frustration.
Angie

Enjoy your Mac..

YESS, you will LOVE your Airbook!

THere is a whole website for people who despite Hewlitt-Packard and I bet there is one for Dell.

Hi Angie,
We old-timers have had our share of red-tape rants about incompetence. That person who annoys me so much I nick-named “Chuck”. Chuck works everywhere, especially in the IT departments that are outsourced out of this country. I hope you enjoy your new computer.
xoxo

 Thanks Debbie,
Chuck is a pain. He called again today. I couldn’t understand anything that he said except manager and sorry.

 Thanks Debbie,
Chuck is a pain. He called again today. I couldn’t understand anything that he said except manager and sorry.

 Thanks Debbie,
Chuck is a pain. He called again today. I couldn’t understand anything that he said except manager and sorry.

 Hahaha! You get it :D Hey, when this glitch happens and you think your comment isn’t posting, leave it open, go back to your email and open the page again, you’ll usually see it went. Also, when you make an oops, look in the upper right corner of the blue comment box and you can delete what you don’t want. Good luck with “Chuck”, lol.
xoxo

Good job:-)
.. and now I now know what Alienware is .. thanks to Google!
Hugs,
Fred

Nutrition

Hi,
A guy that works at the hospital I work at was diagnosed with Stage 4 tonsil cancer (my cancer) a few months before I was. After I was diagnosed, he called me and helped me know what was to come. He was very kind and offered to help in anyway he could.

He ended up losing over 100 pounds through and after treatment. He was malnourished and looked bad. His post treatment PET scan was NED. He died yesterday. He was a really good guy.

It was a sudden death and listed as cardiac arrest. Well, we all die of cardiac arrest (it means his heart stopped). He never recovered from his treatment, even though the treatment killed his cancer.

I hate to admit this but I freaked out, not only because he made it through treatment and died, but because it could be me. I have people that push me into getting the calories and nutrition I need. If not for them…..

All you tonsil cancer folks, I know how hard it is to eat and drink. I know how miserable it can get. I know how painful the ulcers are. I know you just don’t have an appetite. But, please focus on your nutrition.

Malnutrition can cause electrolyte imnbalance. Electrolyte imbalance can cause cardiac dysrrythmia. Cardiac dysrrythmia can cause sudden death.

Focusing on nutrition doesn’t stop when treatment stops.

Sad,
Angie

3 people threw a punch at your cancer.
Elana Rose Graves, Rab0841 sent you a prayer.
6 people sent you a hug.

I am sad for you and your loss of your friend. Take it as a warning, and eat something – for his memory!

Thanks Helen,
I did.

I’m sorry too that you lost a friend…the food thing is priority number one (with the proper nutrition of course) but the old Chips, pretzels, cheese and stuff dont’ seem to ever be able to come back. Keep feeding tubes in longer – get the nutrition any way you can….I have made it to 186 and my Gen/ Prac. said that is a good target weight for me….from 225 to 173 to 186…It will work!

I am sorry you lost your friend that was actually trying to help you get through cancer. One of the first ‘lectures’ I got from the radiologist was ‘you must get enough calories. I don’t want to cure your cancer and lose you to malnutrition! I’ve seen it happen.” If I remember correct, the second was to drink plenty of water and not get dehydrated.

Sorry to hear Angie. It’s hard especiaally when you are close to someone, not to mention the same type of cancer. Treatments have side effects many would not think to link with, but is usually the underling cause. I had malnutrition/dehydration for several reasons, including c-diff and lost 100lbs. Thanks for thinking of everyone at a time of loss.

I am so sorry thast you lost your friend and totally agree and understand fully what you have said! I can’t eat as much as most people as far out of treatment as I am, but do try to put 2000 calories of Resource 2 through my love/hate tube no matter what I put in my mouth, and do understand that I still definately need it. I just got myself a good serving of ice cream to help you in the memory of your friend! I am so sad too! Huge hugs for you dear Angie!
Val

So sorry for your loss. I plan on on updating my blog on a related topic so will only chime in to say that I had a lot of trouble the last couple of weeks staying hydrated, eating swallowing etc.
They finally admitted me for 7 days to get me to a more manageable level.
Hydration – so important.

So sorry you lost your friend and treatment mentor, Angie.
All hail the Angie Angels who pushed you for calories and nutrition!
Here’s some HYDRATE, HYDRATE, HYDRATE and NUTRITION, NUTRITION, NUTRITION nagging, dear. I can keep this up …if necessary.
Thanks for your loving tribute, and medical advisory. What a sweet touch of Angie love.
Hugs, Nicole

So sorry about your friend but this post is great advice. It’s something everyone should think more about.How are you doing?

I’m very sorry for the loss of your friend. Thank you for posting this because it’s a great reminder to everyone here who may be struggling with appetite issues during treatment to do whatever they must to get the nutrients they need.

Angie, Thank you for sharing this..my heart goes out to his family. I struggle everyday to eat enough and your encouragement helps me. I am so sorry our brother in the fight didn’t make it after he had worked so hard.. I am thankful for everyday now and have found joy in things that I didn’t even notice before..like trees, flowers, smiles on little childrens faces..my best wishes to you Angie and thanks for sharing.

I’m sorry for the loss of your friend and fellow cancer warrior – calories and nutrition are so very important. Johnny has probably thought about divorcing me many times over the last year because I push him still to eat – He’s holding steady (for the last several months) at 149 right now…lost 50. It seems so unfair to go thru all the hell that is treatment, just to lose the fight because of treatment. Thank you for sharing this – and may it help someone who is struggling with the same issues.

I am so sorry to hear of your friend. My heart goes out to you. Nutrition is so important. God bless

The impact and ramifications of cancer are not always clear to see nor are they immediate. Every day I have moments where I recall incidents from the treatment. Your nutrition becomes of paramount importance but it does change the way you perceive food. I no longer take as much pleasure in eating or preparing food. It has become fuel and little more. I can completely understand how someone can fail to get the impetus back to eat. But it is such a salutary lesson.

I am so sorry that he has died.

H
x

Hi Angie,
Sorry for your loss.
Sinding prays to both of you.
Thanks so much for sharing.
Pen

I’m so sorry to read about your friend.

I am a bad water drinker myself. I mostly like to drink ginger ale. As I will be entering my second round with radiation and now chemo… your advice will remain with me and give me the much needed push to be diligent with both hydration and nutrition.

Thank you for sharing and in essence… kicking me in the butt to stay on top of it.

Hugs,
Elana Rose

Thanks for the sweet response. I was upset when I wrote the post. Now when I read it, it sounds kinda preachy. I just hate the thought of anyone going through all we went/are going through and then not surviving the side effects of treatment.
Reading your post, you sound so strong. I’ll say a prayer all goes good.
Angie

You don’t sound preachy to me, Angie, just caring and maybe a little scared. I’m sorry for the loss of your friend. It makes me so angry how much cancer steals from all of us. Hugs-Ann

Angie, so sorry to hear about your friend. I would think that with that particular cancer they would put in a feeding tube to try to get nutrition in a way that bypasses the mouth and throat when it gets difficult to eat and swallow ..to be used continuously or intermittently. Nutrition with treatment is so important. I agree…I try to help others that I come into contact with that have new a new diagnosis -give them ideas about what helped me and emphasize the importance of eatting..so sorry. I understand the freak out. I took care of a patient that had my cancer, received one treatment and died from infection in the hospital 1 week after being admitted. That was my big fear and there it was ..bam and I was watching it play out right in front of my eyes. I had shake myself and tell myself..that wasn’t me..but, there is was like a bad movie..I hope today is a better day..and thank God..it isn’t you..

Thanks Eileen,
He pulled his feeding tube a couple of months after treatment. He was around 8 months post treatment. I think he might have had some depression along with all the other stuff that affected his eating.
Angie

I can understand that. Cancer really sucks and that is it. So sorry. It is tough to stay on top of nutrition. I lived on chobani yogurt and instant breakfast shakes with extra whey protein mixed in with fruit. I can imagine with that type of cancer it can be especially challenging to get in what you need..especially without a tube. So sorry.







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